International holidays - World Hemophilia Day

International Hemophilia Day falls on the same date regardless of the year – April 17th It refers to normal workdays and is not a day off unless it coincides with Saturday or Sunday Hemophilia is a severe genetic disease in which the blood clotting process is disrupted The name is translated from Greek as “tendency to bleed” Without special treatment, people with this pathology are at high risk of disability and often do not live to adulthood Many countries have joined the World Hemophilia Day campaigns over the history of its celebration We first heard about it in 1989 It was then that two organizations, WHO (aka WHO) and WFH (World Federation of Hemophilia), decided to add to the calendar of international holidays The date is not random Frank Schneibel was born on April 17th He is the founder of the World Federation of Hemophilia The main goal of the events dedicated to April 17 is to tell the world about this disease, the seriousness of its consequences and the difficulties of people suffering from it They “open their eyes” to problems, push public and medical organizations, and country leaders to provide comprehensive care to patients Traditionally, on this day: • thematic seminars, lectures, conferences discussing current issues in the treatment of people with bleeding disorders; • advanced training courses, where medical specialists exchange best practices; • screenings of documentaries and programs about the disease, discoveries of scientists and achievements in treatment; • award ceremonies with the presentation of diplomas and certificates to doctors who have distinguished themselves in this field The media of different countries do not stand aside They publish scientific reports with the results of current research, expert recommendations on improving the quality of life and maintaining the health of patients with hemophilia In Russia, World Hemophilia Day was celebrated for the first time in 1996 The organizers try to come up with something special so that the holiday does not go unnoticed So, on April 17, 2016 in Moscow, the Ostankino Tower was illuminated in red, and media screens proudly displayed the inscription in two languages ​​“World Hemophilia Day” and “World Hemophilia Day” The events are attended by specialized departments of medical universities, teachers and students The date is celebrated by employees of charitable organizations and laboratories, physiologists, hematologists, researchers, as well as all people who are faced with such a diagnosis